Oh, Hello

Well. Hello, Loves. It's been a minute. Honestly, I've sat in this very position, upright in my bed, getting ready to write numerous times.  I've had so much to say, but zero focus and zero time. Ehhh, that might be a lie.  I think maybe the opposite is true.  I've had nothing to say. I've [...]

From Trent…

Looks who's getting their write-on. I think we'll start to hear more and more from him personally, which I love. It's not an easy thing to do, this "sharing" business, thinking about your own mortality, but it's so helpful when we think big picture. Peripheral ❤ Good morning everyone. I had a good night of [...]

Post-Thanksgiving

I'm tired. And I know that this goes for all of us. I see it and feel it all over everyone. We're sick more often and tired all the time. Our energy stores are empty and our capacity for patience is topped. Trent is really feeling tired since his experience with the pleural effusion from a few [...]

Life

 I really don't have much to say today. He's sick. Some days are better than others. The girls have been really helpful to me lately. Thank you to Betty, Ashley and Lisa for pitching in with the kids this week while we've taken care of some things. It was really good to see my F-I-L [...]

So This Happened…

A few months back I was approached through this very blog by a lovely lady, Kathleen Engel, who also happened to be an editor from Health Monitor Magazine.  You know, the magazines you read in the doctor's office, while you're waiting. You know those people inside? Yeah, they're real people! Their stories are real, and [...]

#RareDiseaseDay – Who Knew?

Today is #RareDiseaseDay. Who knew? I do now. In case you're keeping count we have 2 in our immediate family #LongQT2 and #SynovialSarcoma. The medical field has only been aware of Long QT2 (a heart condition that causes sudden death - Sabrinna​, Gavin and I have it) for about 50 years. Want to know more [...]

What is Synovial Sarcoma Anyway? – Not, really. Maybe next week…

This morning I was all prepared to write a blog with facts.  Facts about Synovial Sarcoma and a bunch of statistics about how rare it is and why it happens and what it does to the body and who knows what if anything.  You know, trying to give you a better picture of what we're [...]