Tiny Update 

Trent has definitely felt better. We've been dealing with a lot of changes in a short period of time. He's been doing a lot of resting and sleeping lately. We've had many many memorable conversations in the wee hours of the morning. I wish I could find a way to take his pain away. I'd [...]

CANNABIS – An Answer

***UPDATE. SCROLL TO THE BOTTOM FOR MORE INFORMATION*** I asked for a real live answer.  Here it is. So I've had a really rough couple of days.  I feel lost. I feel hurt. I feel angry. I feel tired. I feel like right now, as I write this my brain is the clearest it's been [...]

So This Happened…

A few months back I was approached through this very blog by a lovely lady, Kathleen Engel, who also happened to be an editor from Health Monitor Magazine.  You know, the magazines you read in the doctor's office, while you're waiting. You know those people inside? Yeah, they're real people! Their stories are real, and [...]

“It Starts With ‘H’ but it Ain’t No Hotel”

I'm going to keep this pretty simple.  Trent is back in Brackenridge, pushing through round 2 of Adriamycin/Dacarbazine.  The days before his admission and administration are becoming more and more difficult, for everyone.  He's doing well as of today, but that is via phone call this morning on my way to work, when he is [...]

Why Chemo Sucks So Bad

"How is Trent doing with this round of chemo?"  This is undoubtedly the question I answer most these days.  I don't have a problem with anyone asking me this question at all. It's actually just the opposite.  I really appreciate being asked and knowing that people are interested.  Nope, the problem actually lies in my answer. [...]

It’s National Young Adult Cancer Awareness Week! Yay! Boo.

Yes, there is an entire week dedicated to young adult cancer and how fitting for us that it's this week.  I'm attaching a link that is a brief and awesome explanation as to why young adult cancer sucks so bad.  It's not exhaustive - I'm not sure if the author has kids - but what [...]

#RareDiseaseDay – Who Knew?

Today is #RareDiseaseDay. Who knew? I do now. In case you're keeping count we have 2 in our immediate family #LongQT2 and #SynovialSarcoma. The medical field has only been aware of Long QT2 (a heart condition that causes sudden death - Sabrinna​, Gavin and I have it) for about 50 years. Want to know more [...]

Our Fundraisers – YouCaring, Bravelets, TeeSpring

Here is a link to all of GP6 crowd funding sites. I'm still working on the next t-shirt (kid friendly :)) Thank you so much for your giving. We couldn't make it without your help.  I think that we are, together, bringing awareness to so many issues facing families in today's age and to the [...]

What is Synovial Sarcoma Anyway? – Not, really. Maybe next week…

This morning I was all prepared to write a blog with facts.  Facts about Synovial Sarcoma and a bunch of statistics about how rare it is and why it happens and what it does to the body and who knows what if anything.  You know, trying to give you a better picture of what we're [...]